In the Kemerovo region, the girl's mother with muscular atrophy has filed a lawsuit against local authorities who refused to buy medicine

the Mother of 11-year-old girl with spinal muscular atrophy (SMA), Anastasia Timokhina filed a lawsuit against the Department of health in the Kemerovo region due to failure in procurement of the drug spinrate (aka “Noninert”), the only medication in Russia, able to help children with this disease. On this edition of “Siberia.Realities”, he said Timohin.

According to Anastasia Timokhina, after the January death of Zachary rukosueva of the Krasnoyarsk region, and pickets his parents, officials promised to buy the medicine in “accelerated mode” without the auctions, however, did not keep a promise. “All week I was expecting at least some decisions of this office. Nothing happened. I still get a call from the foster administration and the name on reception, but I didn’t have the energy on empty talk, she said. They why-that have decided that I need to prove to them the effectiveness spinnaz on children older than two years and convince them to buy the drug”.

Today is the first shot spinnaz did Ilya Pashkovsky of Khabarovsk Krai – according to his mother Olga, the Ministry of health of the region after the court decision purchased three doses of the six needed for the year. A day earlier, on March 5, the injection spinesi put the eldest brother of the deceased Zachary dobryn ‘ Rukosueva.

Informed in the Ministry of health of the Krasnoyarsk territory and Kemerovo region by Rukosueva and Timokhina refused to procurement of the drug, indicating that spinrite not included in the list of essential medicines, the country is not defined source of funding, and later demanded a conclusion about necessity of application of drugs at the regional and Federal medical Commission. After Svetlana and Nikita Rukosueva three days in shifts to stand in the picket lines at 6 hours, requiring the procurement of the drug, the Ministry of health of the Krasnoyarsk territory purchased two doses spinnaz “bypass the system”. Parents still thousands of children still get rejected.