In October, appeared in the first hospital of the children’s hospice “House of a lighthouse”. In this house do not cure the underlying disease, and provide palliative care relieve symptoms and create the conditions for children and boys up to 25 years and their families could live, as far as possible, a normal life. Now in its walls opens daily leisure centre, which will be open for boys and girls with serious illnesses. While the center works in test mode its first visitors six children from urban orphanages, which the hospice staff took to their time of isolation to “hide” them from the virus which rapidly could hit all orphans, and the most difficult to kill.
Director of the Fund “House of a lighthouse” the lead of Maniava took to himself from Kuntsevskaya boarding school 12-year-old nick, one of the most difficult children. He forgets to breathe during sleep, do it every day decreases the level of oxygen in the blood to normal 48 out of 100 epileptic seizures. At boarding school he lay down and slept a lot.
“When I had nick, I began to think, what these children do each day? Something to occupy our time? You can’t always lie, but the first half of the month, when there was a quarantine, we spent time: Kohl on my bed, and I’m around all day watched his medical records – the level of oxygen in the blood, respiratory rate, temperature, amount, duration, frequency of seizures. After all these years and had the idea to create a day center where palliative heavy the children can go during the day. Can’t stay all my life in bed”, – told “RG” the lead of Maniava.
While the center is open four days a week from 8.00 to 20.00, but since August it transferred to six-day schedule and all willing patients “Home to the lighthouse”, of which there are about 700 people. Parents can safely leave their children before work and pick them up at the end of the day. With children in the centre will be engaged, walk, word, waiting for their vivid and interesting days. For example, the other day the guys were preparing the summer drink – smoothies. They are familiar with every ingredient tasted mint and different fruit, and then themselves beat the mixture blender. The guys who do not even know how to hold items, help Babysitting. After tasting the cocktail – songs with a guitar on the street. But children do not just listen, and play along with maracas. “For the guys it’s not what they do – draw, sing or sculpt, and the fact that they are in the atmosphere of enthusiastic people involved in a common cause,” says Lida Moniava.
Someone may doubt: what is the use of all this heavy baby? Wouldn’t it be easier for him in his bed? “When I’m with the staff of the hospice went to pick up the children at the time of isolation from the orphanage, they’re all equally crooked lying in bed, thin and curved t��La. Now these six children who lived here, are quite different. They had a full life,” says Lida Moniava.
Kohl, who is really lying – because of dislocation of the hip joints, he even can not sit – Lida plants selected for him in a stroller and go for a walk. They are in stores, parks, walk to restaurants and even beauty salons. “The house nick slept the whole time. During his travels, he looks around. And his life makes sense. Idea of the day center – children with severe disabilities should not be locked up in the house,” she says.
to enroll in a day care center, the site of the hospice will be available for online booking.
